My health is so crazy, I feel like I am trying to solve a mystery but the clues don't make sense and the ones who are supposed to understand what the clues mean are too lazy to look past one glance, and they are also clueless.
I will be seeing a G.I Doctor this money to ask for anti-nausea medication. I already have some but it isn't helping much, and I have had a really hard time eating due to nausea and stomach pain. And I had thought it was just from fibromyalgia pain. But I am no longer convinced that is it.
I suspect I might have gaseoparosis, where the nerve to the stomach is damaged or not working correctly, making it very difficult to eat. I had called the GI doctor's office and asked if I could get in sooner because I am struggling severely trying to get food in me, to the point where I am concerned. So they got me in for Monday.
Unfortunately I will have to see some male doctor, not my normal doctor. Which I am not exactly looking forward to. Don't get me wrong, I am sure there are many many male doctors who are great doctors. However, I have to go off my experience. And in my experience, 97% of male doctors I have had to deal with have been awful.
They usually have the biggest egos. Plus when they see that I am a woman their bias kicks in, either consciously or subconsciously. Even aside from just my experience, statistics show that doctors tend to take women's pain less seriously than men's pain. A man will have something causing him pain and get a certain painkiller and a woman will have the same thing and get a much less powerful painkiller. It's ridiculous.
And obviously not ALL male doctors are egotistical, but every one I have met has been. I think they use their ego to cover or make up for their incompetency. And with the extremely limited amount of energy I have I have to go off of experience. Hopefully I will be fully recovered from my appointment last Monday so I can go this Monday.
I also need to get in with a neurologist, which is another thing. I suspect small fiber neuropathy. I can't afford to see a dermatologist about the chronic rash that is clearly a histamine response, so I just asked my PCP to increase the frequency of my Zyrtec so I take it twice a day.
I feel like I'm collecting chronic illnesses like Pokemon at this point 😂.
In all seriousness, I have been doing a lot of reading and talking to other people's experiences with trying to get their chronic pain and chronic illness properly diagnosed so they can get treatment, and things like fibromyalgia and chronic pain syndrome are often co-occurring with other things. Especially the "Chronic pain Syndrome" I see that diagnosis as the "doctor is too lazy or too much of an idiot to care to find what is actually going on" diagnosis.
But I am making progress in trying to get this all figured out. Hopefully I can get my health to a place where I can function enough to work. But, I'm not going to worry or stress over that yet. First I need to stress about getting my health straight, then I can stress about work.
Hi Rachel!, it's been a while. I've been really busy with a lot of things.
I thought my nausea was caused by the meds, especially tramadol, but reading your post made me think that maybe we're suffering the same thing. These last weeks I haven't been able to enjoy any kind of food, I even started rejecting coffee (one of my beloved things about being alive). Many days I woke up with a horrible urge to vomit, fortunately I didn't. But, such a coincidence.
I can't remember if you talked about it, has it been ruled out dermatomyositis as a possible diagnose?. Because you've got rash, I don't, but I know that illness could bring similar symptoms, adding skin rashes.
@Booky_ Hey! :) Yes I have ruled that out, my rash I am pretty sure is Chronic Spontaneous Urticaria. It could be a part of a larger diagnosis that has to do with the nausea and difficulty eating, but I am thinking I might have that in addition to the gasteoparosis and fibromyalgia. It's all very complicated. There is a chance, as well, that I have some extremely rare condition. If that is the case though, I highly doubt any doctor will ever properly diagnose it, I have pretty much no faith in the health system at this point. I am going to try to take the steps that I can though, see the GI doctor, get better nausea meds, start physical therapy, and go from there.
@rachelrae2003 I see, nanai u.u
Even if it's a rare condition, I hope it's not too serious :'c
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