I have started working on editing and formatting my book. I have been working on putting together a compilation of the poems and creative writings I wrote for my inner child. I am going to title it "Unwavering Phoenix" and I am also including little journaling prompts sections at the end of each poem/letter/writing. I want to work on designing my cover today, I am going to draw it since I have been improving in my artistic skills. But honestly I am not feeling well enough today. I did manage to get a bunch of editing and writing done.
Chronic illness is wild because one day I'm like "Yea okay, I got this" and the next I'm crying on the bathroom floor in extreme soul crushing pain wondering how I'm going to make it through the next 80 years.
This book has been my child basically, I have poured my heart and soul into it. I am very excited about finishing it. I have written it over this past year. It is currently 50 pages, so a little book. But it will probably end up being 100 pages approximately in the end.
I have been having a VERY difficult week. But I did have good things happen this week. My parents were so kind and agreed to help me with my mobility aid. I had in the budget to order it in January, but they were willing to order it now for me and I will be paying them back in January. I was so glad I was crying. I was expecting to have to wait another month, endure another month of grocery shopping hell, another month of not being able to walk down to the riverside like I used to love, another month of taking a week to recover every time I have a doctors appointment.
And it is a nice purple, lilac. I chose that color on purpose because it will be helpful for getting over the anxiety about using it in public if it isn't the usually medical blue or red colors. I don't know how to explain why that is helpful, it's a psychological thing.
I took a shower this morning, it hurt, eczema and CSU my skin burns when I take showers. But the heat also feels good on my sore muscles.
That is awesome, I am glad that you are working on your own personal project and I can't wait to see it published! 80 years is not very long. We just think it is, but it really goes by in a flash. Life circumstances can change in an instant. Everything starts and ends so quickly. One minute you live here, and then another moment you live elsewhere. One minute you are talking to certain people, another moment they are gone forever. Things change so fast.
@JustMegawatt Yea that is true things do change so fast. Chronic illness doesn't though lol, I have more than just fibromyalgia it's almost certain at this point but I am still investigating. This will be this way my whole life, and if aging is bad for healthy people (the aches and pains and joints lol) it's going to be hell for me. But I don't have to worry about that until I get there. I do agree though that life circumstances change all the time, but my health isn't going to change. It could get worse, but not better. Still, I have found ways to enjoy life. It is too short and I want to enjoy it as much as I can :)
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